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Old December 7th, 2011, 06:26 PM   #1 (permalink)
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Brain Shunt Procedure

So, my younger sister recently had brain surgery and things aren't improving as they should be. She has fluid building up where the cyst was removed and the doctors are talking about putting in a shunt. I have grasped the basic concept, just wondering if anyone has dealt with this and knows anything that might help put me at ease about it. It just makes me sick to my stomach thinking about such a big procedure and what complications may come up. Very scary stuff.
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Old December 7th, 2011, 06:41 PM   #2 (permalink)
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oh shit, sorry to hear man... my fiancee deals with brain stuff, not so much on the surgical side, but she might know, i'll send her an email.

good luck to you and your sister.
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Old December 7th, 2011, 06:53 PM   #3 (permalink)
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Rough, I am sure it will be ok though.
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Old December 7th, 2011, 09:16 PM   #4 (permalink)
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Thanks guys. Just trying to gather as much info as I can. I've done hours of research, just looking for life stories and not so much the science behind it.
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Old December 7th, 2011, 10:40 PM   #5 (permalink)
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How old is your sis? Do you know if she is getting a VP shunt? She probably has hydrocephalus which is a buildup of fluid or csf(cerb spinal fluid) in the brain cavity. This shunt is to help relieve that pressure. So she will go into surgery and they will drill a hole into her skull and insert a small catheter... there will be a valve that is positioned behind her ear... then the tube will end probably in the stomach area... when the pressure in the head builds up from the excess fluid the valve will open up then the extra fluid will drain into the abdomen... its nothing bad at all its something that will help take the pressure down in her skull in order for her brain/body to heal better/faster after her surgery... I graduated nursing school last december and I took care of a little boy at Childrens hospital once with one of these... if you have any questions or just need someone to talk to I can try to help you as best as I can. Dont be afraid to message me id love to help you through this I know its rough especially when you dont completely understand everything it can be scary... good luck i will pray for your family!!!! PS hopefully that wasnt too much science for you whoops
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Old December 7th, 2011, 11:04 PM   #6 (permalink)
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^ Lol to the rescue!
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Old December 8th, 2011, 12:24 AM   #7 (permalink)
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Thanks, thats actually the part I'm grasping though. She has hydrocephalus where cerebrospinal fluid is building up due to a blockage from an arachnoid cyst which has been removed but is still causing a blockage in her right temporal lobe. I was just concerned about her life after this shunt. Just the concerns of having one, how her lifestyle will change, frequent doctor visits, possible failure of the valve. I just don't know how problematic they can be or what kind of restrictions it might cause her to have.
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Old December 8th, 2011, 09:13 AM   #8 (permalink)
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Tyler I sure hope your sister will be fine. I have a friend who had one of these for similar reasons and it worked perfectly, he healed, and now has no issues.

Korinda...Great post! Got you an e-rep!
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Old December 8th, 2011, 01:08 PM   #9 (permalink)
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Thanks, thats actually the part I'm grasping though. She has hydrocephalus where cerebrospinal fluid is building up due to a blockage from an arachnoid cyst which has been removed but is still causing a blockage in her right temporal lobe. I was just concerned about her life after this shunt. Just the concerns of having one, how her lifestyle will change, frequent doctor visits, possible failure of the valve. I just don't know how problematic they can be or what kind of restrictions it might cause her to have.
Ya the shunt is a lifelong commitment the doctors visits are to keep an eye on the device to make sure its keeping the pressure/fluid down in her head. By these checkups they will be able to tell if the valve is cooperating... if not the valve is located around the ear area and the valve will just need replaced but it being located here it prevents them from having to go into the skull they can just go right under the skin...the only other issues i see affecting her later in life is as she grows they may need to replace the catheter going into her belly just because as she grows the tube will need to be longer to reach down there.
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Old December 8th, 2011, 01:15 PM   #10 (permalink)
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Gotcha, thanks. It was just a big shock when I found out yesterday and I was trying to understand it the best I could.
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Old December 8th, 2011, 11:14 PM   #11 (permalink)
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Korinda...Great post! Got you an e-rep!
ty
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Old December 9th, 2011, 07:04 AM   #12 (permalink)
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Tyler,
Praying for your Sister.. Stay Strong
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Old December 13th, 2011, 10:49 PM   #13 (permalink)
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Thanks guys. Just had a doctors visit yesterday. They said its looking a little worse. That was just the opthamologist though. She still has to see her surgeon to see what has to be done. I appreciate the support.
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Old December 14th, 2011, 01:00 AM   #14 (permalink)
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thats rough to hear man. i cant offer much or any info for that matter. but im rooting for yall.
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Old December 14th, 2011, 10:23 AM   #15 (permalink)
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Praying for you guys... Keep us updated...
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Old December 22nd, 2011, 12:05 AM   #16 (permalink)
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She got to come home from the hospital today. Everything went smoothly.
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Old December 22nd, 2011, 03:15 AM   #17 (permalink)
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Good to hear! Congrats!
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Old December 22nd, 2011, 06:34 AM   #18 (permalink)
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Yay thats so exciting Im glad you all get to spend the Holidays together!!!
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Old December 22nd, 2011, 08:06 AM   #19 (permalink)
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She got to come home from the hospital today. Everything went smoothly.
Good for her!

Tyler you're a good brother. You should continue your research and familiarize yourself with her condition and terms associated with it. You'll be a great asset to your family and her if she or they ever have questions. I will keep your family in my prayers.

I'm impressed at those members who posted here I love seeing people help other people. That's the way it should be.

Happy Holidays all.
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Old December 27th, 2011, 03:04 AM   #20 (permalink)
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Thanks guys. I bet it's hard to find this kind of support on other forums. Great to know I can come to club4g for just about anything.
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Old December 27th, 2011, 11:24 AM   #21 (permalink)
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Great to hear Tyler...so glad your sister is making progress!
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Old December 28th, 2011, 05:36 PM   #22 (permalink)
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Good friend of mine has one.
Plus I've got alot of medical experience, so if you have any questions or anything PM me.
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Old January 6th, 2012, 04:44 PM   #23 (permalink)
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Good friend of mine has one.
Plus I've got alot of medical experience, so if you have any questions or anything PM me.
Thanks, I'll be sure to remember this.
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Old February 2nd, 2012, 12:02 AM   #24 (permalink)
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She had to have another surgery, but this one should have it taken care of.
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Old February 2nd, 2012, 12:11 AM   #25 (permalink)
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She had to have another surgery, but this one should have it taken care of.
Sorry to hear about another surgery, but it sounds like a promising prognosis. Much love to you and yours!
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